Neurofibromatosis Type 2 is a debilitating neurological disorder that goes by many aliases; MISME (Multiple Iherited Schwannomas, Meningiomas and Ependymomas), BAN (Bilateral Acoustic Neuomas), but if you ask an NF2 patient, it's really just a big PITB (Pain in the Butt). NF2's range is unknown but it is thought to effect 1 in 25,000 worldwide.
I'm one of those lucky 25,000.
There are 4 major sources of information on NF2; CTF (Children's Tumor Foudation), Advocure, NF2IS and the NF Network. Visit any of these websites listed below to learn more about the 3 types of NF or to donate to research.